Sunday 7th May 2017 was my sister-in-law’s birthday. My husband and I both went to join in with the birthday celebrations.
It was a lovely day and we were all having fun. I had felt perfectly fit and well, and I was enjoying a glass of Prosecco and a piece of chocolate birthday cake, when I experienced a cracking headache and vision loss. It was an odd sensation and the family joked that it was the mother-in-law’s chocolate cake, or the alcohol (I only had one glass, so I knew it was not this).
My husband made a comment “You have not had a stroke”. Since then he has felt awful for this . He is autistic and this was his sense of humour, as he put it. I came home from the party early to go to bed. I simply put this down to a migraine and tiredness, and I took some pain relief. When I woke in the morning I realised I could still not see properly and that my head was pounding.
I was taken to the hospital by my mother, where we sat in A&E for at least 4 hours, to be told by a consultant that I had not cleaned my glasses properly! I explained that I had, but I was told to go home as it was a migraine. My saving grace was that the Healthcare Assistant, who was in the same room had recognised me from working in the same hospital. The consultant then offered to scan me, although he felt it was still not necessary.
The CT scan had indeed showed something, so I was then sent for a MRI which confirmed that I had definitely had an ischemic stroke (right PCA infarct).
The consultant later apologised for not taking me seriously. I then discovered that I’d had a transient ischemic attack (TIA) in 2015, which was misdiagnosed – and at the time I was informed my MRI was normal. I was then admitted onto the stroke ward where I was the youngest patient. Even then it had not registered to me how serious this was, and I was still trying to help/care other patients next to me instead of resting (I think that is the nursing side of me).
I stayed on the stroke ward for almost a week. For me the hardest part was the convalescing at home for seventeen weeks, when I desperately wanted to be back at work.
A year after the stroke I was diagnosed with a patent foramen ovale (PFO). A surgery was performed in 2019 and there were not any side effects, and the hole is now closed and I continue to take clopidogrel and statins for security.
I have since been under the chronic pain team as I constantly suffer with neuropathic pain, neuro fatigue and chronic fatigue. I suffer with left sided weakness and numbness. The last year I have been receiving help from the continence team. This was something I hid and was embarrassed about, as I was reasonably young (urge incontinence).
My personality is always glass half-full, always looking on the bright and positive side. I thrive to help others. Recently I had to retire from my job due to my ill health; a very sad and hard decision, as I lived and breathed it.
Normally I would not want to write about my stroke journey, but I always read other’s journeys and I am always encouraged by them. So, I felt as it is my fifth anniversary approaching, I wanted to own it and not ignore it – or feel ashamed or embarrassed by it all. I had been good at wearing the mask, but now I want to be transparent.
I am a stroke survivor and I am still kicking its ass. I am grateful to tell my journey and be proud. Different Strokes has kept me going the last few years. The invaluable support is incredible and you are never made to feel alone. Thank you ever so much.
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There are 100,000 strokes in the UK each year with 1 in 4 happening to somebody of working age or younger. Different Strokes aims to promote independent stroke recovery and help these younger stroke survivors reclaim their lives.

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