Alan’s Story – Haemorrhagic Stroke at 64

Picture of Alan who survived a stroke at 64

I’m Alan, and at 64, I realise that I’m one of the more senior storytellers here. I’ve spent all my working life in the Creative/Media Production industry. Having completed a six year reprographic apprenticeship, I joined a start-up business in West London in the Summer of 1982, where I remained for the next forty one years. It had been the most wonderful career, but I had no intention of going on forever. I had agreed with my Board colleagues that I would step down at the end of March 2023, but that I would remain as Group Non Executive Director. I should add that I have enjoyed exceptionally good health in my life up until now.

In forty seven years at work I had only been off twice, and even then for just a few days. My wife Sue, and two sons, Alexander and Thomas, were thrilled that I was at last going to take life easier. 

My wife Sue, and two sons, Alexander and Thomas, were thrilled that I was at last going to take life easier. Apart from my Non Exec role, I had no intention of doing anything for six months, bar enjoy the summer, tend my South Buckinghamshire garden and visit our health club more (Sue and I practice yoga and pilates and we swim, walk and use the gym each week). However, a chance meeting with an old friend who owns a Fine Art gallery and Restoration business near Windsor, resulted in me agreeing to work a couple of days a week at the gallery looking after clients and assisting with general management duties. I literally started the first week of April, and whilst a little daunting to begin with, I was loving it, in particular, the small team of highly skilled people I was working with.

At 2.00pm Wednesday 24th May, the gallery owner, Lead Restorer and I had just sat down for a review meeting. We were ten minutes into the meeting when “it” happened. My colleagues had just started talking through some ideas on how we could consider the gallery space, when from nowhere I could feel a sensation move from my upper back and creep up into my head; resulting in a strange, ‘mushy’, pulsing headache – I could feel pressure. Next, came my eyes and the most strange experience of both my eyes dancing around and having what felt like dancing spasms. They say things come in threes and what came next for me was a feeling in my left leg as if someone heavy was sitting on my thigh. All three symptoms dispersed at the same time, which I’d say was around a minute.

Call it bodily instinct, but as soon as the mushy headache started I knew something was not right. The eyes kicking in just heightened this and I knew at that point I needed to keep calm and to deep breathe – in and out through my nose, just one of many things we’ve learned through yoga. I’m totally convinced this helped me. At first my two colleagues were oblivious to my situation, but then, at the same time, they sensed something was untoward. I requested some water and asked if we could pause the meeting as I didn’t feel right and that I wanted some fresh air. I stood up and although shaky, I was able, with support from my colleagues, to walk out of the gallery and over to the church yard opposite where we sat on a bench and called my wife. Although she’s not a medical professional, Sue does work for a surgeon and has a good knowledge of certain medical matters.

Thankfully, Sue was able to collect me and within forty minutes I was in A&E at my local hospital in Slough. Multiple tests followed, and the possibility of a TIA or stroke was mentioned, but I was told that I would require an MRI scan to confirm if it was a stroke, but this could only be done early the following morning, which meant an overnight stay. I really don’t remember much at all at what happened apart from I knew that I had lost some peripheral vision in my left eye/lower left quadrant and also the feeling of disorientation and hearing the words from the acting consultant that afternoon saying that I had experienced a stroke, and that the clot was the reason for the sight loss. On leaving the hospital I was fully briefed on the my medication, informed of further tests and told I could not drive for a month. Let’s be honest, stroke in medical terms, is a worrying word and one that we’d rather not be on the receiving end of, but at least my family and I knew what had happened to me.

This was “Day One” and what was to be the start of my recovery journey. It was a tough and emotional start for me. I had little energy, memory struggled at times, and for at least a month had intermittent sensations in my eyes, one being the rapid flashing of little red, green and blue “Christmas Tree” type lights, another being strange “Henna” type patterns, in “Henna” colours. Although difficult to state accurately, I knew that I had gained some peripheral vision back. Having read up on the condition I believe the progress with my eyesight may have been attributed to the lights and patterns I was seeing.

Responses to letting people know of my situation were always the same, with “I can’t believe it, but you’re in good shape, you’ve never smoked, don’t have high blood pressure, no cholesterol issues, drink sensibly, keep healthy, etc”. I received a similar response from my new Stroke Consultant, who said that the team had nick named me “The Puzzle” as I had no underlying health issues, or obvious family trace of stroke or heart health, but that through further rigorous testing they would determine the cause of my stroke. One of the tests was the wearing of a heart monitor for forty eight hours and it was the data that came from this that confirmed that I had an irregular heartbeat, or atrial fibrillation (A-fib). I had absolutely no idea as I was asymptomatic to any feeling/sensation. I also don’t wear an Apple Watch or similar device that measures heartbeat, so I would not have known.

It was at this point my Stroke Consultant said that I needed to see an Electro Cardiologist for further tests, including an Echo Bubble Cardiogram. This call ended with my Stroke Consultant saying that because of my eye progress, that I could now take the required DVLA Visual Field eye test at a nearby eye hospital in Windsor. On the day, I remember being extremely anxious about the eye test and went on to fail. Thankfully, four and half months later I did pass the test and now have my mobility back. Patience was needed. I can’t thank all those enough who ferried me around over the summer months.

Additional tests followed after going back to the Electro Cardiologist, including an Echo Bubble Cardiogram further wearing of another Holter device (seventy two hours this time) which meant a move to a different Electro Cardio Specialist Consultant in London. The results I received at the follow up meeting again confirmed my heart was out of sinus normal rhythm, this time for around 32% of the time. It was during this meeting that the Specialist Consultant discussed a Cryo Ablation procedure and his recommendation for me to have it done, which I did on the 7th November. On the advice of the surgeon, I invested in a little device  that measures my heartbeat, which I taking at various times each and every day. Fast forward to January 2024; I was back in for further tests last week – Echo Cardiogram, ECG and further wearing of a Holter and blood pressure monitors (seventy two and two four hours respectively). 

So, seven months after my stroke and what I have learned?

  • I know how fortunate I have been in terms of symptoms and appreciate that it could have been so much worse.
  • I also know that positive thinking is a powerful tool and can help greatly.
  • I also know how important is it get support over and above friends and family.

I found Different Strokes purely by chance and that’s not right, particularly given what they do and how they do it. In the meantime, and to all my fellow stroke survivors, good health and happiness to you all.  

Your donation helps others like Alan on their journeys

There are 100,000 strokes in the UK each year with 1 in 4 happening to somebody of working age or younger. Different Strokes aims to promote independent stroke recovery and help these younger stroke survivors reclaim their lives.

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