Vertebral Artery Dissection Stroke Stories

 

Cervical artery dissection is a condition where you have a tear in the wall of one of the large blood vessels (arteries) in your neck. This can cause blood clots in your arteries, which can affect the blood supply to your brain.

More information: https://bit.ly/3zvYDRZ

Picture of Katy, who survived an ischaemic stroke at just 43 with her family

Katy’s Story – Ischaemic Stroke at 43

One thing I’m still finding a challenge is other people, but I have a nine year boy, who is all the inspiration I need. Friends and colleagues mean well, but unless you have been through a trauma like this, I don’t think anyone can truly understand. You have to be able to communicate that to them for them to help navigate your new world as well. Yes, I look and sound the same, but I am fundamentally different; I walk the world like a child, I am nervous for every corner I turn, every new old experience and socializing turns into being asked how I ‘really’ am – or forgetting that I can’t keep up the pace I once had, that I need to know if there are stairs, timings, I can’t take myself lots of places, it has become exhausting. I get that this is hard on them too, but I can’t help but think this is probably worse as a younger stroke survivor because I was very independent and active before my stroke. I can still count on both hands the number of times I’ve left the house alone in three months.

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Picture of Rob who survived an ischaemic stroke at 52 with his pet dogs

Rob’s Story – Ischaemic Stroke at 52

A friend of mine who has gone through a traumatic medical experience gave me some great advice which I’ll pass on. In the short term, focus on recovery and not rehabilitation. As someone who had an active, busy (and sometimes stressful) life, it has taken a while to learn just to ‘exist’ for a while. It doesn’t take much to tire me out. I just must listen to my body and not push it too hard too soon. Different Strokes has enabled me to share my story and ask the questions I need to from those who have been through this. Don’t be afraid to talk to someone – it’ll always help.

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Picture of Ellen who survived an ischaemic stroke at just 32

Ellen’s Story – Ischaemic Stroke at 32

I am feeling more myself and grateful that my experience feels mild in comparison to what other stroke survivors have to experience. It has been hard accepting my new reality; having to stop, slow down, put work aside and take baby steps in recovery. I would like to run towards being back to myself, but I know it’s a slow and bumpy walk instead.

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Picture of Jess who survived a stroke at just 41 due to dissection of my vertebral artery

Jess’s Story – Ischaemic Stroke at 41 caused by Vertebral Artery Dissection

Although I am extremely lucky to have no lasting physical effects from the stroke, this also creates mixed feelings. It creates an ‘invisible illness’ that people struggle to appreciate the enormity of what you’re living with. The ‘I’m fine’ and ‘Yes, I’m doing really well thank you’, roll off the tongue as it’s easier than saying ‘I’m scared’, ‘I feel isolated’ or ‘I’m lonely’.

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