Joel’s Story – Stroke at 16

Joel had a stroke at 16, which severely affected his speech. Be amazed at his bravery and progress in the video he kindly shared with us.

Picture of Joel after surviving a stroke aged just 28

“Originally, I wanted to be a writer. Then at 16 (2008) I had a major stroke.  It was a clot in my artery. I was at school changing for P.E. when it happened.  I fell down, dizzy. I want to call out “Help! HELP!” but I cannot speak.

When I come out of a coma three days later I am in hospital. I have lost all speech and am paralysed down one side.

A part of my skull has been removed to relieve the pressure on my brain.  I lost my language and I had to learn to walk again. I was in The National Hospital for Neurology at Queens Square (London) for five months in all, including rehab. They gave me an electric wheelchair – it was fun whizzing around the hospital!

My parents and friends also took me out in a wheelchair for lunch in Brunswick Square between my many physio, OT and speech therapy sessions – and endless blood tests…

After a brief spell at home (with more therapies and tuition) I was accepted into a Brain Injury Centre in Surrey.  Every day I had speech therapy, OT, physio, and English lessons. I learnt to cook, and I learned to play electric drums with a specially adapted drumstick.

I created sculptures and painted self-portraits. It was residential, but I came home for weekends.  After Banstead I got a residential place at Hereward College in Coventry. This was more focussed on my education. I had English, mathematics, media and photography lessons. By now I knew I wanted to get into film work. I made 3D models, and had more speech therapy and physio. I applied to a school for film in 2011 and my Disabled Student Allowance paid for a notetaker. I began to specialise in editing.  I also directed my own short film. I had a support person/AD to help me communicate as a director. It was an intense experience!

I had a very positive reaction to my graduation film “I Speak” (below). It’s an experimental film about my journey with speech. I entered it for a number of festivals. The film interweaves speech and dance.  There is a link to my film at the bottom of this page. Please watch and share!

Since graduating I have continued to develop my editing skills and have worked on several major and some smaller projects. I have a support person/PA to help me communicate. I have applied for government funding from the Access to Work programme to fund a PA.

The success of “I Speak” encouraged a follow-up called “I Bake”, a near-silent comedy which explores aspects of my life with right-sided weakness. I am beginning to work on a third short film in my trilogy called “I Bleed”.

All of my short films deal with aspects of living with stroke. My learning is on-going as an editor. I love the creativity, emotion and storytelling of film. It’s a tough industry. I find networking hard because of my speech and language difficulties, which affect my confidence. I have contact with two agents but getting work is a slow process. I will keep going!

In terms of my private life I live in a flat near my parents and have a flat-mate. I am a keen Arsenal supporter and am a season ticket holder. I enjoy walking, playing table-tennis, watching films, meeting up with friends and going to gigs. I learned about Different Strokes after my stroke. I use the Different Strokes exercise programme (Level 5) and I benefit from the website.  In terms of advice to those who have recently had a stroke I would say:

Never give up, find something you love and find a way to pursue it. People will help you!  People have helped me every step of the way and continue to do so…

Your donation helps others like Joel on their journeys

There are 100,000 strokes in the UK each year with 1 in 4 happening to somebody of working age or younger. Different Strokes aims to promote independent stroke recovery and help these younger stroke survivors reclaim their lives.

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