Useful Links 2017-09-12T12:20:54+00:00

Useful Links

We provide links to other charities or non-profit organisations that may be helpful to younger stroke survivors and their families.

If you would like to suggest a website you felt has been helpful, please email us the URL and a short description of the site you recommend.


  • Abilitynet  Concerned with making mainstream computer technology accessible to people with disabilities.
  • Active Neurotherapy is a center that is providing efficient rehabilitation that could help many young stroke survivors. This center is treating stroke patients in such a way that new areas of the brain could learn to perform functions that are lost due to the stroke or brain injury
  • Afasic The UK charity representing children and young adults with communication impairments, working for their inclusion in society and supporting their parents and carers.
  • Aphasia Alliance The UK charity representing children and young adults with communication impairments, working for their inclusion in society and supporting their parents and carers.
  • Aphasia Now Focusing on resources for people with Aphasia, and raising awareness across the UK.
  • Aphasia Software Finder This website has information about software programs and apps for people with aphasia in the English language. We aim to help people with aphasia to find software that may be useful to them.
  • ARNI Action for Rehabilitation from Neurological Injury is a small charity which was set up by Dr. Tom Balchin in 2001. ARNI provides accredited functional rehabilitation training for fitness instructors at Level 4, for the benefit of stroke survivors who wish to improve their mobility and functional movement.
  • AVM Support UK  AVM Support UK, which is the first site in the UK to provide information and support for arteriovenous malformation patients and their families.
  • Behind the Gray An online support community for those whose lives or relatives/friends have been affected by a subarachnoid haemorrhage or stroke.
  • Benefits and Work Guides Including PIP, Disability Living Allowance, Disability Discrimination Act, Attendence Allowance,Carers Allowance, Disability benefits and Incapacity to Work
  • Bobath Centre for Adults Specialises in therapy for people with a variety of acquired neurological conditions, such as stroke, regardless of age and duration of disability.
  • British Epilepsy Association Helping people with epilepsy to face the world with confidence, and helping people who don’t have it to understand and change their attitudes towards it
  • Carers Trust A world where the role and contribution of unpaid carers is recognised and they have access to the quality support and services they need to live their own lives.
  • Carotid Dissection Group This is a discussion group for patients who have had a stroke as a result of carotid dissection, to share experiences and find emotional support from fellow stroke from carotid dissection survivors.
  • Cerebra Cerebra is a unique national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. Download their toolkit which aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services.
  • Cerebral Palsy Causes  Cerebral Palsy is caused by damage to the brain before, during and even after birth. Cerebral Palsy Guide offers information about the treatments, therapies and support options available to those with cerebral palsy.
  • Cerebral Palsy Symptoms  Cerebral palsy is the most common type of physical disability in childhood. Learn all about Cerebral Palsy and other common birth injuries here.
  • Child Brain Injury Trust  Today the Child Brain Injury Trust (CBIT) is launching its new website to provide an easy to use, informative and practical tool for parents and professionals caring for and supporting children and young people who have an ABI
  • Cinema Exhibitors’ Association The Cinema Exhibitors’ Association provides a national card that can be used to verify that the holder is entitled to one free ticket for a person accompanying them to the cinema. To apply for the card, you will need to be in receipt of the disability living allowance or attendance allowance or be a registered blind person. The card is valid for 3 years from the date of issue – processing fee of £5.50 is chargeable per card. Application forms are available from cinemas across the UK supporting this card. Alternatively, download an application form to print out and fill in, by clicking on the link above.
  • Conductive Education  An educational approach to strokes which helps individuals develop the skills and motivation they need to overcome problems of movement and bodily control they encounter in daily living.
  • Contact A Family The only UK charity providing advice and support to parents whatever the medical condition of their child.
  • Council for Disabled Children Works with policy makers, professionals, carers, children and young people themselves to ensure that their voices are heard and action is taken.
  • Depression Alliance A UK charity offering to help people with depression, run by sufferers themselves.
  • Diabetes UK The leading UK charity working for people with diabetes, funding research, campaigning and helping people live with the condition.
  • Disability Alliance Produces the “Disability Rights Handbook” and has an advice service Mon-Wed 2:00-4:00pm on 020 7247 8763.
  • Disability Disabled  A website designed for children and adults who have impaired mobility or movement and to help in giving you what you need when you need it. Our aim is to make it as easy as possible for you to order the goods you need and get them to you as quickly as possible.
  • Disabled Living Foundation  A national charity aiming to provide the best possible choice for people who use equipment to live a more independent life. Also runs a national telephone helpline Mon-Fri 10:00am-4:00pm on 0845 130 9177, providing immediate advice and information on equipment, gadgets and where to find them.
  • Disabled Motorists Federation The Disabled Motorists Federation (DMFed) is a national registered charity addressing and advising disabled drivers on specific motoring issues. With an extensive network of associations with other charities (both local and national), NGO’s and commercial organisations they  inform, advise and resolve issues covering a vast range of topics & in those instances where we can’t, we know the people who can.
  • Disability Rights UK  Disability Rights UK has been formed through a unification of Disability Alliance, Radar and National Centre for Independent Living on 1 January 2012. We aim to be the largest national pan-disability organisation led by disabled people.
  • Disabled Workers Co-operative  We are a ‘not-for-profit’ organisation that is creating an online Database of the skills, products and services that disabled people have to offer. Registration on the database is FREE and it is FREE for anyone to use.
  • Exercise After Stroke  A website providing details of exercise groups in Scotland, along with background information on the research evidence on exercise after stroke and best practice guidance on setting up and delivering these services.
  • Facial Palsy  A personal story of what it is like to live with Facial Palsy and some helpful tips. The website includes video of gold implant eyelid weight tests.
  • Good Access Guide  A unique directory of accessible leisure pursuits, holidays and travel, transport, mobility products, and daily living services for disabled people, their families and friends.
  • Headway  The UK Brain Injury Association. Its aims are to promote understanding of all aspects of head injury and to provide information, support and services to people who have suffered a head injury, their family and carers.
  • HemiChat is a parent led UK Charity built on support relating to babies, children and young adults living with Hemiplegia.
  • HemiHelp  Provides information and support for children with hemiplegia and their families and aims to increase public and professional awareness of hemiplegia and its associated conditions.
  • Hemi-Kids Foundation  We provide information and support to families of children who have hemiplegia, often the result of a pediatric stroke. We have a listserv group that provides online support to parents of children with hemiplegia and currently has members from all over the world
  • Hughes Syndrome Foundation  A registered charity, aiming to provide information about Hughes Syndrome (antiphospholipid syndrome: APS), to help fund research into this condition and provide support to sufferers
  • Involving People  Set up to support and encourage patient, service user and carer involvement
  • ITCH  ITCH (IT Can Help) – a network of volunteers who are able to offer Free local computer assistance to disabled people
  • Lead Scotland  A charity that enables disabled adults across Scotland to access education and learning opportunities.
  • Low Salt Product Information  The process of identifying products that are low in salt is incredibly time consuming, and this site will help you identify products that are low in salt, as well as providing information you need to know about them and where you might find them.
  • Motability is a national UK charity, which helps disabled people and their families to become more mobile. It was set up on the initiative of the Government in 1977, to provide vehicles and powered wheelchairs to disabled people.
  • Mums with Disability  A website for Mums with Disability. Mums can ask questions, discuss gadgets, tell their own story. Whether you’re expecting or going through that teenage phase, we would like to hear from you.
  • NHS Choices Information from the National Health Service on stroke, including learning to spot the symptoms of stroke, tips on cutting your risk and recovering from a stroke.
  • National Society for Epilepsy  The NSE is the largest UK medical charity for epilepsy; our doctors and scientists are internationally renowned for their research and assessment of the condition. We have a range of information services including a confidential epilepsy helpline, epilepsy awareness training, provision of leaflets, books and videos, a patient self-management programme, and a network of epilepsy information services.
  • Neurological Alliance The Neurological Alliance brings together over 60 charities working to make life better for people with a neurological condition.
  • Nursing Home Abuse Guide  Our mission at nursinghomeabuseguide.org is to provide the public with accurate and up to date information on the many aspects of nursing home injury and abuse. Our team strives to provide a comprehensive free resource for the public to learn more about nursing home abuse and the actions they can take to protect a loved one.
  • Patients Association  A registered charity which protects patients’ rights and lobbies for a better deal for patients. Contact The Patients Association Helpline on 0845 6084455 (Mon-Fri 10:00-4:00pm) you need advice on problems relating to health and healthcare, or you need to talk to someone about your experiences. The magazine “Patient Voice” can also be downloaded from the site
  • Patient UK  Comprehensive, free, up-to-date health information as provided by GPs to patients during consultations.
  • Pediatric Stroke Network  US site seeking to provide information and support to parents, siblings, relatives and friends of infants, children and teenagers who have suffered a stroke and the after effects of stroke such as Hemiparesis and Hemiplegia.
  • PhysioFunction  Comprehensive private neurological physiotherapy for the treatment of Strokes and other conditions. Our team of highly trained specialist physiotherapists aim to maximise our client’s independence with individually tailored treatment sessions in one of our clinics, in the client’s home or in nursing/residential homes.
  • Princess Royal Trust for Carers and Young Carers  Fighting to provide carers with the support they so desperately need. At the heart of the Trust is a unique network of 144 independently managed Carers’ centres and interactive websites (as linked above) which deliver around the clock support to over 400,000 carers and approximately 25,000 young carers.
  • Protel Health  Committed to promoting technology for independent living, allowing those who wish to live with dignity and security within their own homes to do so. We aim to recognise the needs of those wanting to live independently, by raising awareness about the modern solutions that can provide peace of mind for both them and their loved ones.
  • Queen Elizabeth’s Foundation Mobility Services  Queen Elizabeth’s Foundation Mobility Centre provides an extensive training programme, a telephone information service, assessments and tuition for disabled people who wish to learn to drive, or are uncertain about the type of car adaptations required, or wish to resume driving.
  • SAFE  SAFE (Stroke Awareness for Everyone) provides information and support to stroke survivors and their families, including the Stroke Caregivers Handbook, available at no charge from the website.
  • Samaritans  If you need someone to talk to in confidence, you can ring or email the Samaritans 24 hours a day, 365 days a year.
  • Self Help UK  Self Help UK provides a searchable database of over 1,000 self help organisations and support groups across the UK that offer support, guidance and advice to patients, carers and their relatives
  • Sibs  For brothers and sisters of all ages of people with special needs.
  • Speakability (Action for Dysphasic Adults)  Speakability is the national charity offering information and support to people with Aphasia, however caused. It was founded as ‘Action for Dysphasic Adults’ in 1979 by Diana Law who had personal experience of Aphasia. The charity runs a Helpline and Information Service, campaigns for greater understanding of Aphasia and better services and empowers people with Aphasia through its national network of Self-Help Groups
  • Specialist Info  Contains details of over 26,000 medical consultants with information on their special interests and contact details.
  • Sportability  Sportability is a British Registered Charity who’s remit is to work solely with people affected by paralysis throughout the UK. People with post stroke effects, spinal cord injury and M.S. can take part in a range of sports including sailing, quadbiking, archery and many more.
  • SpeakwithIT  SpeakwithIT aims to help people who have aphasia with their speech once their NHS speech therapy has come to an end. They aim to help people to gain confidence, lose their feeling of isolation and get back into the wider community.
  • Stroke4Carers  A site with over 340 pages, aiming to give practical advice, information and support for stroke carers. They have added 34 film clips which are available to download and they have used interactive graphics and links to other websites for further information. The site has been written with members of the public in mind and tries to explain some of the medical information in simple terms. The only part of the site which is exclusively Scottish is the section on legal issues, so it is likely to be useful for all carers in the UK
  • Stroke Support Group  Online stroke support forum for stroke information, advice, message board and online chat for all stroke survivors and carers
  • The Surgery Door  Website provides information on specific conditions or health issues, local health service information a health magazine and daily tips, plus sections aimed at teenagers, carers, new parents and the over 50’s.
  • TrustedCare.co.uk  an online listing service of UK Care Homes, Nursing Homes and Home Care Agencies, free to use for the public and created to help people find information on local care provision, local care quality and service pricing.
  • Turn2us  Provides financial help for the millions of people in need across the UK
  • UK Stroke Forum  Bringing together the multidisciplinary stroke community to improve stroke care in the UK
  • Welsh Act FAST  A bilingual stroke symptom awareness website, this new website aims to equip the public with the knowledge necessary to recognise the signs of a stroke and be a ‘stroke saver’. The website also provides links to other helpful websites which offer advice and support
  • Youreable Youreable is the home of a vibrant community of disabled people, supporting and helping each other by sharing their experiences. It is run by leading national charity the Disabled Living Foundation (DLF).