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Useful Links

We provide links to other UK based charities or non-profit organisations that may be helpful to younger stroke survivors and their families.

If you would like to suggest a UK based charity’s or non-profit organisation’s website you felt has been helpful, please email us the URL and a short description of the site you recommend.

Useful Links

A

  • Abilitynet  Concerned with making mainstream computer technology accessible to people with disabilities.
  • Able2B is about optimising day to day function for individuals with a disability, is at the forefront of what we’re working together towards.  Adapted programs and activities are designed to the individual to help them reach their goals and fulfill their true potential. They are not a charity and do have some cost but some of our members are so happy with them they’ve requested that they’re added to this section of our website.
  • Able Label High-quality garments have specifically been designed to make dressing easier.  The design of the garments has also taken carers’ requirements into account so assisted dressing is quicker, easier and safer. Yet when they’re being worn, no one would know they were adapted.
  • Accessible Gardening  A Facebook group for anyone with an interest in gardening, particularly those of us who have a disability, started and administrated by one of our members.
  • Afasic The UK charity representing children and young adults with communication impairments, working for their inclusion in society and supporting their parents and carers.
  • Aphasia Alliance The UK charity representing children and young adults with communication impairments, working for their inclusion in society and supporting their parents and carers.
  • Aphasia Now Focusing on resources for people with Aphasia, and raising awareness across the UK.
  • Aphasia Re-Connect We bring people with aphasia together, transforming lives by connecting people with aphasia and creating opportunities to engage with life.
  • Aphasia Software Finder This website has information about software programs and apps for people with aphasia in the English language. We aim to help people with aphasia to find software that may be useful to them.
  • APS Support UK Antiphospholipid syndrome (APS) is an autoimmune disease which affects the blood and its ability to clot. An overactive immune system produces antiphospholipid antibodies (aPL), which cause the blood to clot too quickly both in veins and arteries.
  • ARNI Action for Rehabilitation from Neurological Injury is a small charity which was set up by Dr. Tom Balchin in 2001. ARNI provides accredited functional rehabilitation training for fitness instructors at Level 4, for the benefit of stroke survivors who wish to improve their mobility and functional movement.
  • The Association of Charity Officers  Provides help linked to particular trades and professions and those with a specific condition or disability.
  • AVM Support UK  An AVM is a tangle of blood vessels which connect arteries and veins in abnormal ways.  Find more information and support about this on the Brain Charity’s website.

B

  • Benefits and Work Guides Including PIP, Disability Living Allowance, Disability Discrimination Act, Attendence Allowance,Carers Allowance, Disability benefits and Incapacity to Work
  • Bobath Centre for Adults Specialises in therapy for people with a variety of acquired neurological conditions, such as stroke, regardless of age and duration of disability.
  • Bolton Carers Support  A registered charity that was set up in 1994 and offers a confidential support and information service to carers.
  • Brain & Spine Foundation  A medical charity providing information and services for people with neurological conditions.
  • The Brain Charity Helps people with all forms of neurological condition to lead longer, healthier, happier lives
  • British Epilepsy Association Helping people with epilepsy to face the world with confidence, and helping people who don’t have it to understand and change their attitudes towards it

C

  • Carers Trust A world where the role and contribution of unpaid carers is recognised and they have access to the quality support and services they need to live their own lives.
  • Cerebra Cerebra is a unique national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. Download their toolkit which aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support services.
  • Cerebral Palsy Causes  Cerebral Palsy is caused by damage to the brain before, during and even after birth. Cerebral Palsy Guide offers information about the treatments, therapies and support options available to those with cerebral palsy.
  • Cerebral Palsy Symptoms  Cerebral palsy is the most common type of physical disability in childhood. Learn all about Cerebral Palsy and other common birth injuries here.
  • Chest Heart & Stroke Scotland  Scotland’s health charity supporting people and their families across Scotland with chest, heart and stroke conditions.
  • Chequered Flag Motorsport  Chequered Flag Motorsport, helps those who are usually told ‘no’, or not given the same opportunities as neurotypical, non-disabled or otherwise privileged individuals when it comes to participation in motorsport.
  • Child Brain Injury Trust  Today the Child Brain Injury Trust (CBIT) is launching its new website to provide an easy to use, informative and practical tool for parents and professionals caring for and supporting children and young people who have an ABI
  • Chiltern Music Therapy  Chiltern is an award-winning not-for-profit organisation that provides music therapy, arts in health and community music services to people of all ages and many different needs across the UK.
  • Cinema Exhibitors’ Association The Cinema Exhibitors’ Association provides a national card that can be used to verify that the holder is entitled to one free ticket for a person accompanying them to the cinema. To apply for the card, you will need to be in receipt of the disability living allowance or attendance allowance or be a registered blind person. The card is valid for 3 years from the date of issue – small processing fee is chargeable per card. Application forms are available from cinemas across the UK supporting this card. Alternatively, download an application form to print out and fill in, by clicking on the link above.
  • Conductive Education  An educational approach to strokes which helps individuals develop the skills and motivation they need to overcome problems of movement and bodily control they encounter in daily living.
  • Connections Neuro Services  Providing Conductive Education and Neuro Physiotherapy for stroke survivors.  Group and Individual sessions provided in homes,  schools and community locations across the North West with an educational approach to strokes which helps individuals develop the skills and motivation they need to overcome problems of movement and bodily control they encounter in daily living.
  • Contact A Family The only UK charity providing advice and support to parents whatever the medical condition of their child.
  • Council for Disabled Children Works with policy makers, professionals, carers, children and young people themselves to ensure that their voices are heard and action is taken.

D

  • Depression Alliance A UK charity offering to help people with depression, run by sufferers themselves.
  • Diabetes UK The leading UK charity working for people with diabetes, funding research, campaigning and helping people live with the condition.
  • Disabled Advisor Their goal is to provide users with an easy to use site to help build and spread knowledge, bringing people together to not only share news of the best local groups, websites and products, but share common thoughts, feelings and hopefully make progress overcoming disability.
  • Disability Alliance Produces the “Disability Rights Handbook” and has an advice service that you can call Mon-Wed 2:00-4:00pm on 020 7247 8763.
  • Disabled Living Foundation  A national charity aiming to provide the best possible choice for people who use equipment to live a more independent life. Also runs a national telephone helpline Mon-Fri 10:00am-4:00pm on 0845 130 9177, providing immediate advice and information on equipment, gadgets and where to find them.
  • Disabled Motorists Federation The Disabled Motorists Federation (DMFed) is a national registered charity addressing and advising disabled drivers on specific motoring issues. With an extensive network of associations with other charities (both local and national), NGO’s and commercial organisations they  inform, advise and resolve issues covering a vast range of topics & in those instances where we can’t, we know the people who can
  • Disability Rights UK  Disability Rights UK has been formed through a unification of Disability Alliance, Radar and National Centre for Independent Living on 1 January 2012. We aim to be the largest national pan-disability organisation led by disabled people.
  • Disabled Workers Co-operative  We are a ‘not-for-profit’ organisation that is creating an online Database of the skills, products and services that disabled people have to offer. Registration on the database is FREE and it is FREE for anyone to use.
  • Driving After a Stroke  You can be fined up to £1,000 if you don’t tell DVLA about a medical condition that affects your driving. You may be prosecuted if you’re involved in an accident as a result. It’s the same for TIAs and you can find out more about TIAs (transient ischaemic attacks) specifically here.

E

  • Enable My Trip A charity that exists to make it easier for families and individuals to find suitable accommodation and associated services that meet their mobility needs
  • Enhance The UK  We are a charity run by disabled people. We want to change the way people view disability and for disabled people to be active and equal members of society. We do this by supporting businesses to be more inclusive by providing disability awareness training, as well as offering a number of other services and resources.

F

  • Facial Palsy  A personal story of what it is like to live with Facial Palsy and some helpful tips. The website includes video of gold implant eyelid weight tests.

G

  • Good Access Guide  A unique directory of accessible leisure pursuits, holidays and travel, transport, mobility products, and daily living services for disabled people, their families and friends.

H

  • Headway  The UK Brain Injury Association. Its aims are to promote understanding of all aspects of head injury and to provide information, support and services to people who have suffered a head injury, their family and carers.
  • Heart & Stroke Information Point  Provides reliable, up to date information for patients and carers affected by heart disease and/or stroke condition.
  • How to sleep  “The Complete Guide to Insomnia – and How You Can Manage It” – An in-depth look at insomnia: what causes it, the different kinds of insomnia, and its effects on health and wellbeing.
  • Hughes Syndrome Foundation  A registered charity, aiming to provide information about Hughes Syndrome (antiphospholipid syndrome: APS), to help fund research into this condition and provide support to sufferers.

I

  • Independence at Home Helping you if you, or a member of your family, have a long term illness or disability and need financial help towards the cost of independent living.
  • ITCH  ITCH (IT Can Help) – a network of volunteers who are able to offer Free local computer assistance to disabled people.
  • JAM Card  allows people with a hidden disability or communication barriers to tell others that they need extra time and understanding in a private and easy way
 
  • Lead Scotland  A charity that enables disabled adults across Scotland to access education and learning opportunities.
  • Living with Aphasia  We support people who live with aphasia in Exeter and the surrounding areas of Devon.
  • Male Menopause and Mental Health  The guide shares comprehensive information such as understanding “male menopause” – separating facts from fiction, and why it can be misleading (and harmful) to group the different changes and conditions affecting men as they age under this label.
  • MediPAL is a hard-wearing plastic card that fits neatly into your purse or wallet. Its unique and simple design allows the Emergency services to have instant access to your important medical history and prescription drugs; this really matters when a quick diagnosis is vital. Carrying a MediPAL® card can save your life!
  • Megan Baker House (MBH) provides conductive education sessions for children and adults with motor disorders such as Cerebral Palsy, Developmental Coordination Disorder (DCD), Parkinson’s, Stroke and Acquired Brain Injury, and other movement disorders.
  • Motability is a national UK charity, which helps disabled people and their families to become more mobile. It was set up on the initiative of the Government in 1977, to provide vehicles and powered wheelchair to disabled people.

N

  • NHS Choices Information from the National Health Service on stroke, including learning to spot the symptoms of stroke, tips on cutting your risk and recovering from a stroke.
  • National Society for Epilepsy  The NSE is the largest UK medical charity for epilepsy; our doctors and scientists are internationally renowned for their research and assessment of the condition. We have a range of information services including a confidential epilepsy helpline, epilepsy awareness training, provision of leaflets, books and videos, a patient self-management programme, and a network of epilepsy information services.
  • Neurological Alliance The Neurological Alliance brings together over 60 charities working to make life better for people with a neurological condition.

P

  • Paces  A charity providing virtual active movement classes for stroke survivors.  Currently they are providing 6 week blocks of small-group weekly Zoom classes for Active Movement specifically for Stroke Survivors.  They also provide face-to-face rehabilitation services from the base near Sheffield.
  • Patients Association  A registered charity which protects patients’ rights and lobbies for a better deal for patients. Contact The Patients Association Helpline on 0845 6084455 (Mon-Fri 10:00-4:00pm) you need advice on problems relating to health and healthcare, or you need to talk to someone about your experiences. The magazine “Patient Voice” can also be downloaded from the site
  • Patient UK  Comprehensive, free, up-to-date health information as provided by GPs to patients during consultations.
  • PhysioFunction  Comprehensive private neurological physiotherapy for the treatment of Strokes and other conditions. Our team of highly trained specialist physiotherapists aim to maximise our client’s independence with individually tailored treatment sessions in one of our clinics, in the client’s home or in nursing/residential homes.
  • Princess Royal Trust for Carers and Young Carers  Fighting to provide carers with the support they so desperately need. At the heart of the Trust is a unique network of 144 independently managed Carers’ centres and interactive websites (as linked above) which deliver around the clock support to over 400,000 carers and approximately 25,000 young carers.

Q

  • Queen Elizabeth’s Foundation Mobility Services  Queen Elizabeth’s Foundation Mobility Centre provides an extensive training programme, a telephone information service, assessments and tuition for disabled people who wish to learn to drive, or are uncertain about the type of car adaptations required, or wish to resume driving.

R

S

  • Samaritans  If you need someone to talk to in confidence, you can ring or email the Samaritans 24 hours a day, 365 days a year.
  • SayAphasia  Say Aphasia is a Sussex based charity that supports people with Aphasia and their families and carers.
  • Scope Scope exists to make this country a place where disabled people have the same opportunities as everyone else. Until then, we’ll be here.
  • Sibs  For brothers and sisters of all ages of people with special needs.
  • SOS – Survivors of Stroke  Our main aim is to help and inspire other stroke survivors, we also want to raise awareness that strokes can happen to the younger generation, and also educate and inform everyone on strokes.
  • Specialist Info  Contains details of over 26,000 medical consultants with information on their special interests and contact details.
  • Sportability  Sportability is a British Registered Charity who’s remit is to work solely with people affected by paralysis throughout the UK. People with post stroke effects, spinal cord injury and M.S. can take part in a range of sports including sailing, quadbiking, archery and many more.
  • Stroke4Carers  A site with over 340 pages, aiming to give practical advice, information and support for stroke carers. They have added 34 film clips which are available to download and they have used interactive graphics and links to other websites for further information. The site has been written with members of the public in mind and tries to explain some of the medical information in simple terms. The only part of the site which is exclusively Scottish is the section on legal issues, so it is likely to be useful for all carers in the UK
  • Stroke Alliance for Europe (SAFE)  An alliance of organisations of patients and organisations for patients from European countries.
  • The Stroke Association  UK Stroke Association
  • The Stroke Forum  A medical forum for the exchange of news, views and ideas on stroke
  • Stroke Information  A story by Nick Clarke and other survivors
  • Stroke Odysseys  An opportunity for those who have had a stroke to become part of a unique creative community, offering a participatory arts practice combining movement, music and song-writing that helps to overcome the anxiety, depression, and lowered self-esteem that so often hamper stroke recovery.
  • Stroke Rehab Dogs  to provide innovative and motivating therapeutic opportunities for stroke survivors of all ages and backgrounds who have specific rehabilitation goals and who would benefit from the beneficial effects of working with companion animals.

T

  • TIA: Care after stroke or transient ischaemic attack. What, when and why?  National Clinical Guidelines for stroke and TIA for the United Kingdom and Ireland. 
  • #ATrustedCare.co.uk  an online listing service of UK Care Homes, Nursing Homes and Home Care Agencies, free to use for the public and created to help people find information on local care provision, local care quality and service pricing.
  • Turn2us  Provides financial help for the millions of people in need across the UK

U

  • UK Acquired Brain Injury Forum website  Info on Acquired Brain Injuries and related topics including Governmental movements in the field and regional forums around the UK
  • UK Stroke Forum  Bringing together the multidisciplinary stroke community to improve stroke care in the UK.
  • Underdog Unity  A nationwide network of over 3,600 volunteers across the UK helping dog-owners affected by the impacts of COVID-19 or who are unable to fully care for their dog for other illnesses and physical or mental health reasons.

W

  • Welsh Act FAST  A bilingual stroke symptom awareness website, this new website aims to equip the public with the knowledge necessary to recognise the signs of a stroke and be a ‘stroke saver’. The website also provides links to other helpful websites which offer advice and support

Y

  • Youreable Youreable is the home of a vibrant community of disabled people, supporting and helping each other by sharing their experiences. It is run by leading national charity the Disabled Living Foundation (DLF )
Useful Links

Help to Shape Different Strokes

Different Strokes is run by younger stroke survivors for younger stroke survivors. That’s why each year we ask for your feedback! Tell us what you think we are getting right, where you think we can improve, and what the key issues are for you right now.

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